Seven Things You Should Know About SMA
Since starting this blog, I’ve only briefly mentioned the disease that afflicts my two youngest sons. If you’ve spent any time with me here, you’ve read about wheelchair crashing …
Spinal Muscular Atrophy - SCBN Prescription Advocacy
August is Spinal Muscular Atrophy (SMA) Awareness month. SMA is a group of genetic disorders that are characterized by a loss of certain protein that is necessary for the survival of some motor neurons in the spinal cord. The loss of these neurons leads to progressive muscle weakness and muscle atrophy, starting starting with the... Read more »
Awesome Dad Builds Cool Halloween Costumes for Kids in Wheelchairs
As three of his children have Spinal Muscular Atrophy and use a wheelchair, he decided to incorporate their chairs into their costumes and the results are amazing!
Case of Newborn with Worst Type of Spinal Muscular Atrophy...
Read about a case study of a baby born with the worst type of spinal muscular atrophy, a condition that usually leads to death in the womb.
August is Spinal Muscular Atrophy Awareness Month - Global Genes
Spinal muscular atrophy (SMA) is the leading genetic cause of death in babies under the age of two. It affects families of all ethnic predilections, often with no prior history of the disease. Newborns with SMA appear healthy, but over time their lack of muscular development is debilitating. While intellectual development remains normal, muscle weakness
Instagram Facebook-f Pinterest Shopping-cart HELLO FROM THE OTHER SIDEHELLO FROM THE OTHER SIDEI’m Alyssa, the girl on the other side of this blog you’ve stumbled across. I created this space to help you harness the power of pursuing joy in all facets of life.(Sorry for the super cheesy Adele reference. But, the good news is if you were able to make it through my lame joke, you’re here to stick it out for the long haul.)Let’s pretend we’re meeting in person. (Preferably at a cafe, please.)…